I have learned so well to despise the night
It's become so lonely and sad
There's no such thing as sleep when you're health isn't right
I lie in bed for hours not believing I can feel this bad
When will it end when will it stop
I feel like life is a trick
My health balloon has been popped
I'm so tired of being sick
If I woke up healthy I'd be really shocked
Something must be terribly amiss
To not have to see so many docs
I have now become accustomed to feeling like this
I Try to lessen others worry all the while
The end of the tunnel, the light is very small
I'm trying to keep going I try to just smile
I just hope I'm strong enough to make it through it all
Saturday, December 8, 2012
Late Night annoyance
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Labels: chronic illness, insomnia, late night, poetry
Monday, December 3, 2012
Mama Leah
This is for you Mama Leah! Short and sweet I love you and you are awesome, that is all! Lol
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Tuesday, September 4, 2012
Long time no blog
I know it's been forever since I've posted and I'm sorry for that. There's been a lot going on recently, and I haven't been able to make it to my computer much. I now have a mobile app, so you should start seeing a lot more from now on!
I hope you all are doing well! I just wanted to check in and of course share some storing I've been working on. I recently wrote something about someone very close to me who was struggling with drug addiction and some various other issues. It started out as random thoughts and somewhere along the way it turned into a song. The whole thing is true and in happy to say it has a somewhat happy ending because this person is clean now but is dealing with all over the after math. I hope you guys like it, it's called "Lost"
Lost
I miss the days when you were my best friend,
Now I'm watching the life you knew come to an end
I remember when we would laugh about nothing at all
Little did I know, how far you would fall
I miss you so much and don't know where things went wrong
I just keep hoping you won't be confused for too long
Chorus:
I want to lift the veil that's clouding your vision,
I'm stuck here remembering all your forgettin
Time keeps ticking while life passes by
I know you can beat this if only you'd try
I'm plagued with frustration you can't see the cost
Of all the time you're wasting being so lost
There was a time when I saw such warmth in your face
Now fear and addiction has taken it's place
It hurts me to see you are in so much pain
If I could take it away you'd never see it again
I kept thinking I could love you into putting it down
It's just so painful not having you around.
*chorus*
I never thought I would see you this way
You've forgotten how to live, I never thought I'd see that day
I want so bad to help you leave that ugly place
It seems like you don't even recognize my face
I know you can beat it if that's what you want,
When you make that choice I'll be there right up front
Chorus:
You have lifted the veil that clouded your vision
Now you can see all that you were forgettin
Life is no longer passing you by
You've overcome the odds cause you don't want to die.
Your eyes are open and you see the cost
Of all the time you've wasted being so lost
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Monday, October 31, 2011
Glass Half Full
I drove down to the store in Lancaster 2 weeks ago to pick up some packing tape for the boxes we were packing. I remember feeling stressed and sad that we were losing the house due to the fact that I've been sick and unable to work.
As I was leaving the parking lot I saw a woman standing there holding a sign that said, "Family in need please help." I am a compassionate person but I've seen people holding signs a million times and I have never felt compelled to stop. For some reason I couldn't get this woman out of my head. I went back later and gave her 2 bags of food. There has been debate around town whether this woman was a drug addict or just plain lazy, but something compelled me to give her food. No matter what anyone says, I feel I did the right thing because that's what God put on my heart to do.
I think about how upset I've been about losing my house and after seeing her I just feel stupid. I am blessed enough to have family that have taken us in. My mother and Father in law took us into their home without thinking twice. It makes me wonder where I would be if I didn't have family as good as them, Would I be forced to stand on the corner with a sign in order to survive? How can I not pay forward when so many people have helped me? How many times would I have to endure people driving by screaming for me to get a job because I "Don't Look Sick." Would I be strong enough to swallow my pride and do that.
As I adjust to living with my in laws, I can't help but think of that woman, and feel so blessed. I am lucky to have people around me who will always be there for me. Think about your life and ask yourself if you have that same blessing. If not I strongly urge you re-evaluate who is in your life.
I looked at losing my house as such a loss. I felt like such a loser. Looking at it now, even when I was healthy I was struggling to pay for that house and we didn't even particularly want to live there. Maybe this is God giving me an opportunity to have a fresh start and truly be the person that I want to be.
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Labels: foreclosure, Lupus, Pay it forward
Tuesday, October 11, 2011
I have Lupus and you're just a loser
So as many of you know, when you live the life that we sick people do, television become a big part of your life. There's only so much time you can spend reading,playing on the internet, or your phone. I find myself becoming very caught up in people's lives and feeling what they are feeling. I think being sick has really heightened how I relate to people in general, but especially people who are having personal or life struggles.
Tonight was the premiere of a show called I Used To Be Fat on MTV. I felt really great about this show, due to the fact that America's statistics for obesity in adults and teens is ridiculous. For those of you who have never seen it, it is a show that follows individual teens who want to lose weight and live a healthier lifestyle before they go to college. It's a show that I used to love. I felt the teens personal triumph when they achieved their goals and were able to do things in life that they were never able to do before.
Being sick the last year has greatly affected the way I feel about watching this show. I couldn't believe that a show that used to give me so much hope for people could make me feel so depressed.
At the beginning of the show I found myself becoming more and more angry with this teen boy, with every bite of a greasy hamburger, or every chocolate chip pancake he ate. I'm the first one to say that you have to indulge sometimes, but the quantity of food this kid ate was seriously crazy.
Not only did his food choices and portions bother me, but the thing that really made me furious, was watching this kid sit on the couch and choose not to do any physical activity whatsoever.
It was so great seeing him do the work and get the weight off. He worked very hard and made his life better. He saw something that made him un happy and he changed it. That's so wonderful!
I know this sounds a little selfish, but I want to know where the trainer is that will show up and wave his magic wand and give me the health to excercise like I did before I became a cave creature. I remember a time when I would leave in the morning, work 12 hours, go play softball or go to a dance class after, and still be able to play with my dogs in the yard when I got home. When does the magic guy show up to put me back to being active and 25lbs lighter?
It just makes me sad to see teen kids that are completely healthy wasting it. I wish I could go run on a treadmill and sweat until my muscles scream for me to stop. If I try to walk up 10 stairs my whole body screams for me to stop. Most of the time my body won't even allow me to get up 2 before it completely gives up. I just want to be normal and I see people wasting their lives.
The show Intervention absolutely infurates me! I know drug addiction is a disease and it's a horrible thing to have to recover from. I've been around enough people who are addicted or have been addicted to drugs to know this. Now this next part may make some people mad, but so be it! The part that I don't get is that at some point they made the decision to abuse a drug and essentially poison themselves. I've seen people that I'm close to waste years of their life caught up in a substance that is killing their healthy body. At the point I am in my life right now, I can't even fathom someone intentionally harming their body.
I have to struggle and work hard every day just to do the things that annoy people. I could easily ask someone else to do it for me, but I WANT to be normal. I want to do the boring things that I used to hate because when EVERYTHING that you know is totally taken from you and there's nothing you can do, the things that used to annoy you suddenly seem so stupid. Why did I waste so much time being miserable doing certain activities, that I pray that I might be able to do again.
I take it extremely personally, when people waste their lives damaging themselves. I fight every day trying to repair the damage that my Lupus causes my body to do to itself. How can you waste something so precious? I don't understand it and I probably never will again. So if you are a healthy person who is reading this, please live every day to it's fullest and try to see things from our point of view, and I guarantee you will feel differently about things. Stop poisoning your body! It doesn't matter if you're doing it with drugs, alcohol, food or whatever. Your health is a gift and please don't waste it. Think of it as doing those of us who can't do what you can, a favor!
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Labels: Drug Abuse, I used to be fat, Intervention, Lupus, Obesity, Weight Loss
Wednesday, August 31, 2011
You're not a factor
My thoughts are racing my heart is heavy,
Is it a mistake to bring up the pain,
Its taken me too long to build this emotional levy,
If I break it I might go insane,
For so many years I've just pushed it away,
It was far to painful to think about,
But it is in my head every day,
I can no longer push it out,
You were the one who should protect me from those like you,
You filled me with hate and made me someone I'm not,
It has ruled my life and I know what I have to do,
I've reach out after 20 years for something I've sought,
You planted an emotional bomb in me,
You left it for someone else to deal with,
You didn't take the time to even try to see,
The effects and all the times that I've tripped,
I always wear a smile I use as a mask,
Trying to be happy even though I'm hurt,
I feel like true happiness is too much to ask,
Tried to push it aside but it didn't work,
I feel so betrayed, robbed and sad,
You were supposed to be the one I could trust,
You don't know the effect your mistake has had,
I feel I don't deserve happiness, but God must,
You made it impossible for me to trust men,
You betrayed me in every way,
Although you don't deserve it, I can forgive
My hate will end after today,
You took everything from me but I'm proud that I can still give,
Another man stepped up to the job you should've wanted to have
Although you now say you sorry and live with regret,
The man who doesn't even share my DNA will always be my dad,
I am a big enough person to forgive but I will never forget,
How you slammed me to the ground and didn't even care,
You didn't even have the courage to stay and see the impact of the fall,
When I picked my head up I realized I still had hope and love to spare,
I had to be the strong one because you couldn't make the call,
I'm proud of the person I am with no help from you,
Looking back it was better that you weren't around,
I still pray you are happy and just have a different view,
Just know that I'll always continue to pick myself up off the ground!
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15 years of Hate
Ok so so I'm going out on a limb and telling people my story so I figured I need to tell it all. I am a victim of multiple types of childhood abuse. It felt like such a shameful thing to me to be able to say or even type those words. I've realized lately that's exactly the problem, and that's why so many people get away with it. It's hard for me to talk about it now, even though it was about 15 years ago.
People who have not been through this kind of thing don't realize the ways that something like this can effect you. It can literally ruin your life if you let it. I decided I wouldn't be one of those people who lets it. I would never want to be the kind of person who hates anyone, so I did something I never thought I would do. I confronted this person who I've hated for years and let him know that I forgive him, even though I'll never forget.
I am in no way bragging about it. I am however sharing this because by doing this I took back the control! I think one of the biggest things that's taken away from us when this happens as a child is control and your voice. When we are children we are supposed to do what adults tell us. We don't realize as small children how terribly wrong and damaging some adults are.
Ok I'm not going to drag this out I just wanted to leave anyone who may have experienced what I did, with this one thought. Forgiveness is not to help the person who hurt you, it is necessary for you to be able to truly let what happened to you go!
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